Posted in breast cancer, health

NORMAL IN THE EYE OF THE BEHOLDER

I took a giant leap forward in my journey to return to “normal” this week:  I put on a bra. Yes, for the first time in 2 1/2 months, I was able to expand my wardrobe past the five large, baggy shirts I’ve been confined to wear to conceal my braless status.  If you’re a man, you have no idea what this means to a woman. After all, we wear this confining contraption for men and fashion and a host of other reasons.

I have always had a love/hate relationship with the bra.  I love the lift a bra gives but I hate underwires. I love the clothes that a bra allows me to wear, but I love the freedom leaving the bra behind gives me. Wearing a bra on brand new skin when it’s over 100 degrees out isn’t necessarily the best plan, but I managed to get through it without needing any new skin. I did ache a little after work.  It wasn’t the best feeling in the world, but it was time to rejoin the world as a “properly” dressed woman.

I’ve started meeting with a nutritionist to deal with the weight issue. Surprisingly, I do not eat enough calories in the day, but even so, I find it nearly impossible to lose a significant amount of weight even when I make the effort. I have seen an endocrinologist and the medication I am on for my thyroid is keeping my levels fairly normal, so we are keeping on that track until I have a 3-month checkup in November. 

My energy level increases every day and I feel better each day in general as well. I started taking Tamoxifen a week ago and it has delivered the four side effects I really could do without – road blocks to energy level (fatigue, but so far not as much as the radiation delivered), upset stomach/ZERO appetite, headaches and hot flashes. Hot flashes in 100+ degree weather is not fun.  Having zero appetite when I’m supposed to be eating MORE makes it very difficult to make myself eat, though I’m trying to eat as the nutritionist instructs. Upset stomach and headaches do not help me get motivated to exercise, but I’m pushing as much as I can.  I’ve been told these symptoms should dissipate over the coming weeks. I certainly hope so!

I also need to be patient with myself. I’ve been on a rush to get back to normal, but after four work nights in a row of not getting home until after 8 pm (and then trying to eat right) I was exhausted. The rest of my life will have to unfold a little more slowly if I want it to unfold for the long haul. 

 

Posted in Uncategorized

TIME TO GET BACK INTO THE GROOVE

Since I wrote last, I have gone through surgery and radiation therapy to treat my breast cancer. You can read about that journey on my personal blog

I need to pick up where I left off and steamroll into fall with saturating myself with creative projects, both in writing and photography.  I believe those projects will help keep me sane as I endeavor to regain control of my health.  Stay tuned for updates!

 

Posted in breast cancer

SASSY AND THE CHAMBER OF RADIATION

Thursday I had my final radiation treatment. 33 treatments in total. Just this short time later, the nerves are finally calming, the pain is lessening, and the burns are healing. I am on my way to having my body, brain, and life back.

The last day of treatment for a cancer patient is both exciting and sad. I was so happy my treatments were over, that now I get to have my afternoons and evenings back for other things other than treatments, work or resting. I will actually be able to get back to all the writing, photography and other plans that were derailed in April. It hardly seems possible that almost four months has flown by since the initial mammogram that set all this in motion, but I will gladly take what these last four months have given me – perspective and insight on my life that has been saved from cancer.

Given all that I was excited about Thursday, I was also sad that my days would no longer include trips to visit those work at the chamber of radiation. Each person I encountered always smiled, had positive things to say, and were huge sources of encouragement. I hugged and chatted with everyone as I left, but as I was leaving, I was especially sad to leave AJ, the receptionist. I have never met a receptionist who actually viewed their duty as a calling rather than a job.  AJ always greets with a smile and can lift spirits of those who are facing the dark realities of their condition.  One day when he was not at the office, I walked in just as the lady who delivers the mail said, “He’s not here?” and I saw her shoulders droop. “He can always turn my day around.” These are the people I am leaving behind to return to my life.

I’m certain I will be more prolific at what I’ve learned the past four months in the coming days.  I’m still wrapping my brain around the fact that I am no longer a visitor to the chamber of radiation and I sincerely hope this is my final tour through the ordeal of cancer. I know many people right now who are facing a breast cancer far more fierce, who are losing but still fighting. Each person who navigates this road will have a completely different experience and set of circumstances, and if I ask of you only one thing is not to compare one person’s experience with cancer with another as I have tried to do the same.

This journey, as I have been reminded, is far from over. There are follow-up appointments and regular visits to the oncologist in the coming years that will ensure I do not forget my life is no longer the same.  I will, however, continue to do what I need to do so the cancer does not return.

I do not wish to return to the chamber of radiation – ever.

Now, I am going to try and figure out what to do next!

Posted in Harry Potter

SAYING GOODBYE TO THE BOY WHO LIVED (SPOILERS)

I started my journey with Harry Potter four years after the rest of the world.  Ten and a half years ago, I was sitting in a waiting room at the Indiana University Medical Center with one of my brother’s nephews.  He was reading a book called, Harry Potter and the Sorcerer’s Stone and he was devouring it like it was his favorite ice cream. His mother asked me if I’d read the books, and I hadn’t, but I’d heard a great deal about the book series – mostly negative.  The enthusiasm of this little boy stirred my curiosity so much that when he’d finished the book and asked if I wanted to read it, I said yes, and my journey with Harry Potter began.

After reading the first book in the series (while my brother’s nephew sat next to me and eagerly read Harry Potter and the Chamber of Secrets) I was so enthusiastic about Harry’s story that one of my friends ran out and bought all the books (Goblet of Fire had just been released) and stuffed them in my suitcase. The next three books, I went with my friend Jene’ to midnight release parties at Borders and read them in the first 24 hours after I had them in my hands so I would not have to go live in a cave to avoid spoilers.

The creator of the Harry Potter series, JK Rowling, created a character so rich, so flawed, so complicated and so inspiring that the world has gladly spent the last 14 years journeying with Harry through 7 books (not including the side books like Tales of Beedle the Bard) and 8 movies. Each time I’ve left the theater I couldn’t wait to see what lay ahead for Harry. Since 2007, I’ve known how the series would end, but today, I saw the final saga, Harry Potter and the Deathly Hallows (part 2).

Reading a book and knowing how the story would end, there were no surprises for me, but seeing the story (and what an excellent job screenwriter Steve Kloves did with it) fleshed out so vividly made the wait for the movie worth it. My favorite movie in the entire series had been Harry Potter and the Prisoner of Azkaban until today. Today, something happened that hadn’t happened that has not happened for me during a movie in years, and never during one of the Harry Potter movies, not even when Cedric Diggory died – I cried.

I cried a lot during this film, actually.  The ladies next to me cried, one even wept openly during several scenes and asked me if I needed a tissue at one point. I was touched by several things in the movie, especially when Harry walked through the great hall during the battle of Hogwarts and saw all the people who had been sacrificed fighting for what they believed in. I started crying when I saw George weeping over Fred’s lifeless body, but lost it completely when I saw Lupin and Tonks lying next to each other, knowing they had left behind an infant who would never know his parents, just like Harry. 

The scenes explaining the loyalty, bravery, and exceptional love of Severus Snape were touching for nearly everyone in the theater. When Harry was collecting the memories from Snape and Snape reached up and touched Harry’s face and said, “You have your mother’s eyes,” before Harry even went to the pensieve, Harry knew, deep down inside, that Snape was good. I could tell who hadn’t read the books because there were gasps as Snape’s story unfolded – of how much he loved Lily Potter and wept over her dead body as Harry cried in his crib, of how Dumbledore trusted Snape and asked him to kill him so that he could get even closer to Voldemort, and how, even as Dumbledore reveals that Harry must die, that Snape had grown fond of Harry, and found Dumbledore’s preparing of Harry as a pig to slaughter disgusting.  Dumbledore finally realized that Snape has loved Lily Potter all this time and will, “always.”

One of the moments that got most cheers was when Molly Weasley duels Bellatrix Lestrange after Bellatrix tries to kill Ginny.  It was worth waiting for.  “Not my daughter, you, BITCH!” Molly, a softly padded wizarding family housewife and mother of seven, rises to the occasion and Bellatrix is outmatched and dies with the smirk wiped off her face and dissolved into the air.

When Harry walks toward the forbidden forest to confront Voldemort, he opens the snitch and says, “I am ready to die.”  How many 17 year-olds know what self-sacrifice or any kind of sacrifice truly is? Harry walks toward death willingly, believing he must do so so that Voldemort can finally be defeated and the world will be safe.  When he opened the snitch, he called his parents, Sirius, and Lupin back from the dead. The calm and quiet that surrounded him was felt in the theater. People were on the edge of their seats. Waiting. Knowing what would happen next.

Voldemort kills Harry, at least the part of him that lived in Harry.  Voldemort’s victory is only truly cheered by the worst of the worst, Bellatrix Lestrange and a few others. Voldemort asks the students and the adults who had come to fight for Harry who will join him.  Only Draco Malfoy crosses the line, but not after hesitating for what seemed like a long time. He had been torn, even since he was charged to kill Dumbledore in The Half Blood Prince, between doing what is expected (evil) versus what he believes to be right. Harry saved his life in the castle, and Draco knows where his loyalty should lie, but he finally walks toward his parents.  Instead of waiting around with Voldemort to celebrate, the battered family walks away. They do not belong on either side any more. All they have left is each other. Through the three brilliant actors who played the Malfoys, you felt every struggle, torment, regret, and defeat.

One character everyone has waited to see have his big moment is Neville Longbottom.  After Draco Malfoy walks away with his parents, he steps up and steels himself while Voldemort mocks him.  Then, Neville, tired and injured, says that even though Harry’s dead, the cause for freedom and doing what’s right isn’t.  He was ready to lead the charge and eventually gets to kill the snake, Nagini, the last horcrux.  When he does, Harry is able to defeat Voldemort once and for all. 

The movie ends with the epilogue that was in the 7th book, “19 Years Later.”  Harry and Ginny are married and have three kids and Ron and Hermione have two kids.  Three of the children, James and Albus Potter, and Rose Weasley, are going back to school at Hogwarts. It was a satisfying moment to see something so normal and touching happening for these families and it was happening because of Harry’s sacrifice and willingness to confront evil, and the willingness of others to stand with him.

Very few movies end with applause, but the people in the theater clapped and then got up and left before the credits started to roll.  I couldn’t move.  I sat and watched the credits (which reads like a who’s who of British thespian royalty) and I was one of two people in the theater.  I watched until the very last words faded off the screen.  I stood on the stairs with another lady about my age and she said, “I can’t believe it’s over.”  I walked out into the lobby and thought I was walking through a funeral home. People of all ages who had just seen the movie were grieving, in a way.  The character of Harry Potter will live on through books and movies and memory, but his character will no longer develop, at least not in print. 

As someone who loves stories and rich, deep characters, Harry Potter has been a favorite of mine for the last ten years. JK Rowling has created a character and a world that has touched the imaginations of millions of people.  She is definitely talented but I don’t think lightning will strike twice with her, though I hope she writes more enjoyable stories.  Many people will try to fill Harry’s shoes with Harry-like characters, but there will never be another story quite like his. 

It’s time for a new story, a new character to love, but it will take a while. I will miss reading about the boy who lived and watching him fight for what is right – larger than life on the big screen.  I will revisit his story from time to time and loathe Hollywood for rebooting the series in thirty years (gnargles will be behind it all).

Goodbye, Harry Potter, and all that you journeyed with. It’s been a pleasure.  Thank you, JK Rowling, for sharing Harry with us.

Posted in breast cancer

TALES FROM THE DRESSING ROOM


I’m more than halfway through my treatments and let’s just say my skin is in full revolt. Most nights, my skin is crawling and there isn’t much I can do to soothe it. Radiation doesn’t mix with most salves. I keep telling myself this is just a season, but it’s been a long one. Three months in and I can’t wait to wear a bra again, or to wear my girly clothes, or even to have time to go to the dentist.  Even after my treatments are over, I will still have another waiting period of healing, much like you have to wait to eat your food for a few minutes after microwaving it because it’s technically still heating, but at least I’ll be almost finished cooking.

People rotate in and out of radiation treatment. I meet someone, I make a connection, and then Monday happens and they are no longer in treatment. I may never know what happens to them, I just have to trust that they return to their lives and live them to the full.

Take Hazel for example (not her real name). Hazel is a lady that I shared the waiting/dressing room with for about three weeks. She is older, somewhere in her 60’s, and she has returned to work. She’s been through chemo or hell, however you choose to package it.  Hazel didn’t talk much the first week and didn’t smile much at all. Someone with that disposition might as well hang a sign around their neck that says, “I dare you.”  I love those kinds of dares.

One day the wait was a little long, so I took her dare and complimented the shiny hat that covered the bit of hair that had grown back from her stint with chemo. The tip of the iceberg crashed to the floor.

I’m amazed at how quickly after a diagnosis patients are whisked through chemo and radiation, and Hazel was no different. She told the doctor she had a family vacation she wanted to take before she started treatment and delayed chemo for two weeks.  The vacation was with family overseas and she was determined to take it because it might be her last vacation for a while, or in her opinion, ever.

I told her that we should take all the opportunities we can to live life to the fullest because we are survivors.  Her countenance clouded, then she said, “everyone keeps telling me I’m a survivor. I’m sitting in here waiting for radiation… and… I don’t feel like a survivor.”

My Sassy filter did not deploy, but since I’ve determined from watching all 7 Harry Potter movies Saturday and Sunday that my brain has wrackspurts (aka radiation brain), I was not surprised that I said, “Hazel, you’re a survivor until they pull the sheet over your head.”

Since we were not alone, I waited for a gasp, chastisement, or even disgust. Instead, the person just within earshot was amused and Hazel’s eyes ere wide. Then, for the first time since I’d been trying to get to know anything about Hazel, she started to laugh, a deep, heartfelt laugh.

“I’m going to tell my kids that one.”

She smiled Friday when I saw her, and I got her to laugh again by telling her, as she feverishly worked on a crossword puzzle, that I had been to crossword rehab (I’m not proud of it!) and only recently had been released to play Scrabble again. She kept giggling and it was music to my ears.

This week, her treatments were over, and I haven’t seen her since. I hope she is on her way to good health, that she gets to fill towers of crossword puzzles, take more trips and laugh.

After all, we’re all survivors until they pull the sheet over our heads, and even then, some of us know what’s hidden behind the veil.

Until then, I need to get back to my Scrabble game.